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Albert F. (2016). Idősek kapcsolathálózati jellemzői (Caracteristics of egocentric network among
older people) Demográfia 59. ÉVF. 2–3. SZÁM, pp. 173–200. DOI: 10.21543/DEM.59.2-3.2
Anioł W., Bakalarczyk R., Frysztacki K. (2015). Nowa opiekuńczość? Zmieniająca się tożsamość
polityki Społecznej. Toruń: Wydawnictwo Naukowe Uniwersytetu Mikołaja Kopernika.
Bekele B.B., Alhaffar B.A., Wasnik R.N., Sándor J. (2022). The Effect of the COVID-19 Pandemic
on the Social Inequalities of Health Care Use in Hungary: A Nationally Representative
Cross-Sectional Study. Int. J. Environ. Res. Public Health, 19, 2258. https://doi.org/10.3390/
ijerph19042258
Braun M., Mikulincer M., Rydall A., Walsh A., Rodin G. (2007). Hidden morbidity in cancer:
spouse caregivers. Journal of Clinical Oncology, 25, pp. 4829–4834.
Bury M. (1982). Chronic Illness as Biographical Disruption. Sociology of Health and Illness, 4,
pp. 167–182.
Chamberlayne P., King A. (1997). The biographical challenge of caring. Sociology of Health &
Illness, 19 (5), pp. 601–621.
Charmaz K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. Sociology
of Health and Illness, 5(2), pp. 175–195.
Courtens A.M., Stevens F.C., Crebolder F.J., Philipsen H. (1996). Longitudinal study on quality
of life and social support in cancer patients. Cancer Nursing, 19 (3), pp. 162–169.
Csanádi, M., Kaló, Z., Rutten-van Molken, M., Looman, W., Huic, M., Ercevic, D., Atanasijevic,
D., László Lorenzovici, L., Petryszyn, P., Pogány, G., Pitter, J., Zemplényi, A. (2022).
Prioritization of implementation barriers related to integrated care models in Central
and Eastern European countries. Health Policy, 16/ 11, pp. 1173–1179, https://doi.
org/10.1016/j.healthpol.2022.08.012.
Csikai E., Patyán L. (2021). Hungarian Social Caregivers’ Challenges in Providing
Home Care to Older Adults with Cancer. Journal of Aging & Social Policy, DOI:
10.1080/08959420.2021.1926210
Csikai E., Walsh K., Floyd A., Patyán L. (2009). The United States and Hungary: An Exchange
of Best Practices in Psychosocial Oncology. Journal of Social Work in End-of-Life Care,
07/5, pp.126–143. DOI 10.1080/15524250903555072
De Graeff A., de Leeuw J.R., Ros W.J., Hordijk G.J., Blijham G.H., Winnubst J.A. (2000).
Long-term quality of life of patients with head and neck cancer, Laryngoscope, 110 (1),
p. 98–106.
De Leeuw J.R., De Graeff A., Ros W.J., Hordij, G.J., Blijham G.H., Winnubst J.A. (2000).
Negative and positive influences of social support on depression in patients with head
and neck cancer: a prospective study. Psychooncology, 9 (1), pp. 20–8.
Encyklopedyczny słownik rehabilitacji (1996), Warszawa: PZWL.
Fleishman S., Messner C., (2015). Cancer in Contemporary Society:Grounding in Oncology and
Psychosocial Care. W: Christ G., Messner C., Behar L. (ed.). Handbook of Oncology Social
Work: Psychosocial Care for People with Cancer (p. 3–8). New York: Oxford Univeristy Press.
Frank A. (2002). At the Will of the Body: Reflections of Illness. Boston–New York: A Mariner
Book, Houghton Miffin Company.
84
Challenges of community-based care for chronically ill people and their families…
Fruzsina A., Koltai J., David B. (2021). The increasing importance of friends: Changes in core
discussion network composition in post-communist Hungary between 1997– 015, Social
Networks, 66, pp.139–145, https://doi.org/10.1016/j.socnet.2021.02.005.
Ge Lixia; Mordiffi, Siti Zubaidah (2017). Factors Associated With Higher Caregiver Burden
Among Family Caregivers of Elderly Cancer Patients: A Systematic Review. Cancer
Nursing, 40 (6), pp. 471–478. DOI: 10.1097/NCC.0000000000000445
Given B., Sherwood P.R. (2006). Family care for the older person with cancer. Semin Oncol
Nurs., 22(1), pp.43–50. DOI: 10.1016/j.soncn.2005.10.006. PMID: 16458182.
GLOBOCAN Global Cancer Observatory https://gco.iarc.fr/ (visited 18.03.2023).
Goren A., Gilloteau I., Less M., da Costa DiBonaventura M. (2014). Quantifying the burden
of informal caregiving for patients with cancer in Europe. Support Care Cancer, 22,
pp. 1637–1646.
Grassi L., Rosti G., Lasalvia A., Marangolo M. (1992). Psychosocial variables associated with
mental adjustment to cancer, Psycho-Oncology, 2, pp. 11–20.
Gyarmati A. (2009). “Hogyan verjünk hidat az idősekhez?”(How to make a bridge to elderly
people?) Információs Társadalom IX, 4. Szám, pp. 55–69. https://dx.doi.org/10.22503/
inftars.IX.2009.4.4
Haley E. W. (2003). Family Caregivers of Elderly Patients With Cancer: Understanding and
Minimizing the Burden of Care. The Journal of Supportive Oncology, 1 (4 Suppl 2),
p. 25–9.
Johnston B. M., Daveson B., Normand A., Ryan K., Smith M., McQuillan R., Higginson I.,
Selman L., Tobin K. (2022). Preferences of Older People With a Life-Limiting Illness:
A Discrete Choice Experiment. Journal of Pain and Symptom Management, 64/2,
pp. 137–145. https://doi.org/10.1016/j.jpainsymman.2022.04.180
Kacperczyk A. (2006). Wsparcie społeczne w instytucjach opieki paliatywnej i hospicyjnej. Łódź:
Wydawnictwo Uniwersytetu Łódzkiego.
Lubecki M. (2011). Polski model rehabilitacji medycznej zaakceptowany i zalecany przez WHO.
Hygeia Public Health, 46(4), pp. 506–515.
Macioch T., Hermanowski T. (2013). Koszty pośrednie chorób nowotworowych w Polsce w roku 2009.
W: Hermanowski T. (red.), Szacowanie kosztów społecznych choroby i wpływu stanu zdrowia
na aktywność zawodową i wydajność pracy, (s. 181–183). Wydawnictwo Wolters Kluwer.
Magyar Nemzeti Rákellenes Program (Hungarian National Anti-cancer Programme) 2018–2030
https://onkol.hu/wpcontent/uploads/2018/12/Az_onkol%C3%B3giai_seb%C3%A9szet_
alapjai_Dr.Mersich_2018.10.05.pdf
Maravic Z., Rawicka I., Benedict A. et al. (2020). A European survey on the insights of patients
living with metastatic colorectal cancer: the patient journey before, during and after
diagnosis – an Eastern European perspective. ESMO Open 5:e000850. doi:10.1136/
esmoopen-2020-000850
National Oncological Institute. https://www.noisk.sk/narodny-onkologicky-register/
epidemiologia-nadorovych-ochoreni-na-slovensku
Northouse L., Katapodi M., Song L., Zhang L., Mood D. (2010). Interwentions with Family
Caregivers of Cancer Patients: Meta-Analysis of Randomized Trials. A Cancer Journal
for Clinicians, 60(5), pp. 317–339. DOI: 10.3322%2Fcaac.20081
Osowiecka K., Rucińska M., Andrzejczak A., Żarłok E., Chrostek I., Nawrocki S. (2020). Jaka
miała być rola koordynatora leczenia onkologicznego, a jak jest w rzeczywistości?
Biuletyn Polskiego Towarzystwa Onkologicznego, NOWOTWORY, 5, 1, 3–10; https://
journals.viamedica.pl/
85
Ondrej Botek, Witold Mandrysz, Laszlo Patyan, Sabina Pawlas
Pawlas-Czyż S. (2018). Społeczna rzeczywistość choroby nowotworowej w rodzinie. Profesjonalna
praca socjalna w obszarze wsparcia opiekunów nieformalnych osób chorych onkologicznie.
Przyczynek do refleksji nad onkologiczną pracą socjalną. Toruń: Wydawnictwo Edukacyjne
Akapit.
Prezenszki Zs., Kegye A., Molnár M. (2015). Pszichoonkológia. In: Füredi J, Németh A (szerk.)
A pszichiátria magyar kézikönyve. Budapest: Medicina Könyvkiadó Zrt., pp. 768–780.
Public Health Authority of Slovak republic. https://www.uvzsr.sk/index.php?option=com_con
tent&view=article&id=4992:sprava-o-zdravotnom-stave-obyvatestva-sr-za-roky-2015-
2020&catid=108:materialy-schvalene-vladou
Ribeiro O., Araújo L., Figueiredo D., Paúl C., Teixeira L. (2022). The Caregiver Support Ratio
in Europe: Estimating the Future of Potentially (Un)Available Caregivers. Healthcare, 10,
11. DOI: 10.3390/healthcare10010011
Rohánszky M., Kegye A., Molnár M., Boda É. (2014). Kapitány Zs. Pszichoszociális onkológia.
Gyakorlati útmutató a teljeskörű betegellátáshoz. Budapest: Zafír Press, 254 p.
Romito F., Goldzweig G., Cormio C., Hagedoorn M., Andersen B.A. (2013). Informal Caregiving
for Cancer Patients. Cancer, 119 (11 suppl).
Sagan A., Kowalska-Bobko I., Bryndová L., Smatana M., Chaklosh I. and Gaál P. (2023).
What is being done to respond to the rise of chronic diseases and multi-morbidity in
Czechia, Hungary, Poland, and Slovakia? Front. Public Health, 10:1082164. DOI: 10.3389/
fpubh.2022.1082164
Schroevers M. J., Helgeson V. S., Sanderman R., Ranchor A. V. (2010). Type of social support
matters for prediction of posttraumatic growth among cancer survivors”, Psychooncology,
19 (1), pp. 46–53.
Smatana M., et al. (2016). Slovakia: Health system review. Health Systems in Transition, 18 (6),
pp. 1–210.
Stratégia dlhodobej starostlivosti v Slovenskej republike. 2021https://www.employment.gov.
sk/files/sk/rodina-socialna-pomoc/socialne-sluzby/strategia-dlhodobej-starostlivosti-sr/
strategia-dlhodobej-starostlivosti-sr-sept-2021.pdf
Strauss A. L., Corbin J., Fagerhaugh S., Glaser B. G., Maines D., Suczek B., Wiener C., (1984).
Chronic Illness and the Quality of Life, The C.V. Mosby Co., St. Louis-Toronto.
Weitzner M., Haley W., Chen H. (2000). The family caregiver of the older cancer patient.
Hematology/Oncology Clinics of North America, 14, 1, pp. 269–281, https://doi.
org/10.1016/S0889-8588(05)70288-4.
Wódz K. (1996). Praca socjalna w środowisku zamieszkania. Warszawa: Wydawnictwo Interart.
Zebrack B., Jones B., Smolinski K. (2015). Oncology Social Work Interventions Throughout the
Continuum of Cancer Care. In: Christ G., Messner C., Behar L. (ed.). Handbook of
Oncology Social Work: Psychosocial Care for People with Cancer, pp. 35–42, New York:
Oxford Univeristy Press.
Zemplényi A. T., Csikós Á., Csanádi M. et al. (2020). Implementation of palliative care con-
sult Service in Hungary – integration barriers and facilitators. BMC Palliat Care 19, 41.
https://doi.org/10.1186/s12904-020-00541-0
older people) Demográfia 59. ÉVF. 2–3. SZÁM, pp. 173–200. DOI: 10.21543/DEM.59.2-3.2
Anioł W., Bakalarczyk R., Frysztacki K. (2015). Nowa opiekuńczość? Zmieniająca się tożsamość
polityki Społecznej. Toruń: Wydawnictwo Naukowe Uniwersytetu Mikołaja Kopernika.
Bekele B.B., Alhaffar B.A., Wasnik R.N., Sándor J. (2022). The Effect of the COVID-19 Pandemic
on the Social Inequalities of Health Care Use in Hungary: A Nationally Representative
Cross-Sectional Study. Int. J. Environ. Res. Public Health, 19, 2258. https://doi.org/10.3390/
ijerph19042258
Braun M., Mikulincer M., Rydall A., Walsh A., Rodin G. (2007). Hidden morbidity in cancer:
spouse caregivers. Journal of Clinical Oncology, 25, pp. 4829–4834.
Bury M. (1982). Chronic Illness as Biographical Disruption. Sociology of Health and Illness, 4,
pp. 167–182.
Chamberlayne P., King A. (1997). The biographical challenge of caring. Sociology of Health &
Illness, 19 (5), pp. 601–621.
Charmaz K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. Sociology
of Health and Illness, 5(2), pp. 175–195.
Courtens A.M., Stevens F.C., Crebolder F.J., Philipsen H. (1996). Longitudinal study on quality
of life and social support in cancer patients. Cancer Nursing, 19 (3), pp. 162–169.
Csanádi, M., Kaló, Z., Rutten-van Molken, M., Looman, W., Huic, M., Ercevic, D., Atanasijevic,
D., László Lorenzovici, L., Petryszyn, P., Pogány, G., Pitter, J., Zemplényi, A. (2022).
Prioritization of implementation barriers related to integrated care models in Central
and Eastern European countries. Health Policy, 16/ 11, pp. 1173–1179, https://doi.
org/10.1016/j.healthpol.2022.08.012.
Csikai E., Patyán L. (2021). Hungarian Social Caregivers’ Challenges in Providing
Home Care to Older Adults with Cancer. Journal of Aging & Social Policy, DOI:
10.1080/08959420.2021.1926210
Csikai E., Walsh K., Floyd A., Patyán L. (2009). The United States and Hungary: An Exchange
of Best Practices in Psychosocial Oncology. Journal of Social Work in End-of-Life Care,
07/5, pp.126–143. DOI 10.1080/15524250903555072
De Graeff A., de Leeuw J.R., Ros W.J., Hordijk G.J., Blijham G.H., Winnubst J.A. (2000).
Long-term quality of life of patients with head and neck cancer, Laryngoscope, 110 (1),
p. 98–106.
De Leeuw J.R., De Graeff A., Ros W.J., Hordij, G.J., Blijham G.H., Winnubst J.A. (2000).
Negative and positive influences of social support on depression in patients with head
and neck cancer: a prospective study. Psychooncology, 9 (1), pp. 20–8.
Encyklopedyczny słownik rehabilitacji (1996), Warszawa: PZWL.
Fleishman S., Messner C., (2015). Cancer in Contemporary Society:Grounding in Oncology and
Psychosocial Care. W: Christ G., Messner C., Behar L. (ed.). Handbook of Oncology Social
Work: Psychosocial Care for People with Cancer (p. 3–8). New York: Oxford Univeristy Press.
Frank A. (2002). At the Will of the Body: Reflections of Illness. Boston–New York: A Mariner
Book, Houghton Miffin Company.
84
Challenges of community-based care for chronically ill people and their families…
Fruzsina A., Koltai J., David B. (2021). The increasing importance of friends: Changes in core
discussion network composition in post-communist Hungary between 1997– 015, Social
Networks, 66, pp.139–145, https://doi.org/10.1016/j.socnet.2021.02.005.
Ge Lixia; Mordiffi, Siti Zubaidah (2017). Factors Associated With Higher Caregiver Burden
Among Family Caregivers of Elderly Cancer Patients: A Systematic Review. Cancer
Nursing, 40 (6), pp. 471–478. DOI: 10.1097/NCC.0000000000000445
Given B., Sherwood P.R. (2006). Family care for the older person with cancer. Semin Oncol
Nurs., 22(1), pp.43–50. DOI: 10.1016/j.soncn.2005.10.006. PMID: 16458182.
GLOBOCAN Global Cancer Observatory https://gco.iarc.fr/ (visited 18.03.2023).
Goren A., Gilloteau I., Less M., da Costa DiBonaventura M. (2014). Quantifying the burden
of informal caregiving for patients with cancer in Europe. Support Care Cancer, 22,
pp. 1637–1646.
Grassi L., Rosti G., Lasalvia A., Marangolo M. (1992). Psychosocial variables associated with
mental adjustment to cancer, Psycho-Oncology, 2, pp. 11–20.
Gyarmati A. (2009). “Hogyan verjünk hidat az idősekhez?”(How to make a bridge to elderly
people?) Információs Társadalom IX, 4. Szám, pp. 55–69. https://dx.doi.org/10.22503/
inftars.IX.2009.4.4
Haley E. W. (2003). Family Caregivers of Elderly Patients With Cancer: Understanding and
Minimizing the Burden of Care. The Journal of Supportive Oncology, 1 (4 Suppl 2),
p. 25–9.
Johnston B. M., Daveson B., Normand A., Ryan K., Smith M., McQuillan R., Higginson I.,
Selman L., Tobin K. (2022). Preferences of Older People With a Life-Limiting Illness:
A Discrete Choice Experiment. Journal of Pain and Symptom Management, 64/2,
pp. 137–145. https://doi.org/10.1016/j.jpainsymman.2022.04.180
Kacperczyk A. (2006). Wsparcie społeczne w instytucjach opieki paliatywnej i hospicyjnej. Łódź:
Wydawnictwo Uniwersytetu Łódzkiego.
Lubecki M. (2011). Polski model rehabilitacji medycznej zaakceptowany i zalecany przez WHO.
Hygeia Public Health, 46(4), pp. 506–515.
Macioch T., Hermanowski T. (2013). Koszty pośrednie chorób nowotworowych w Polsce w roku 2009.
W: Hermanowski T. (red.), Szacowanie kosztów społecznych choroby i wpływu stanu zdrowia
na aktywność zawodową i wydajność pracy, (s. 181–183). Wydawnictwo Wolters Kluwer.
Magyar Nemzeti Rákellenes Program (Hungarian National Anti-cancer Programme) 2018–2030
https://onkol.hu/wpcontent/uploads/2018/12/Az_onkol%C3%B3giai_seb%C3%A9szet_
alapjai_Dr.Mersich_2018.10.05.pdf
Maravic Z., Rawicka I., Benedict A. et al. (2020). A European survey on the insights of patients
living with metastatic colorectal cancer: the patient journey before, during and after
diagnosis – an Eastern European perspective. ESMO Open 5:e000850. doi:10.1136/
esmoopen-2020-000850
National Oncological Institute. https://www.noisk.sk/narodny-onkologicky-register/
epidemiologia-nadorovych-ochoreni-na-slovensku
Northouse L., Katapodi M., Song L., Zhang L., Mood D. (2010). Interwentions with Family
Caregivers of Cancer Patients: Meta-Analysis of Randomized Trials. A Cancer Journal
for Clinicians, 60(5), pp. 317–339. DOI: 10.3322%2Fcaac.20081
Osowiecka K., Rucińska M., Andrzejczak A., Żarłok E., Chrostek I., Nawrocki S. (2020). Jaka
miała być rola koordynatora leczenia onkologicznego, a jak jest w rzeczywistości?
Biuletyn Polskiego Towarzystwa Onkologicznego, NOWOTWORY, 5, 1, 3–10; https://
journals.viamedica.pl/
85
Ondrej Botek, Witold Mandrysz, Laszlo Patyan, Sabina Pawlas
Pawlas-Czyż S. (2018). Społeczna rzeczywistość choroby nowotworowej w rodzinie. Profesjonalna
praca socjalna w obszarze wsparcia opiekunów nieformalnych osób chorych onkologicznie.
Przyczynek do refleksji nad onkologiczną pracą socjalną. Toruń: Wydawnictwo Edukacyjne
Akapit.
Prezenszki Zs., Kegye A., Molnár M. (2015). Pszichoonkológia. In: Füredi J, Németh A (szerk.)
A pszichiátria magyar kézikönyve. Budapest: Medicina Könyvkiadó Zrt., pp. 768–780.
Public Health Authority of Slovak republic. https://www.uvzsr.sk/index.php?option=com_con
tent&view=article&id=4992:sprava-o-zdravotnom-stave-obyvatestva-sr-za-roky-2015-
2020&catid=108:materialy-schvalene-vladou
Ribeiro O., Araújo L., Figueiredo D., Paúl C., Teixeira L. (2022). The Caregiver Support Ratio
in Europe: Estimating the Future of Potentially (Un)Available Caregivers. Healthcare, 10,
11. DOI: 10.3390/healthcare10010011
Rohánszky M., Kegye A., Molnár M., Boda É. (2014). Kapitány Zs. Pszichoszociális onkológia.
Gyakorlati útmutató a teljeskörű betegellátáshoz. Budapest: Zafír Press, 254 p.
Romito F., Goldzweig G., Cormio C., Hagedoorn M., Andersen B.A. (2013). Informal Caregiving
for Cancer Patients. Cancer, 119 (11 suppl).
Sagan A., Kowalska-Bobko I., Bryndová L., Smatana M., Chaklosh I. and Gaál P. (2023).
What is being done to respond to the rise of chronic diseases and multi-morbidity in
Czechia, Hungary, Poland, and Slovakia? Front. Public Health, 10:1082164. DOI: 10.3389/
fpubh.2022.1082164
Schroevers M. J., Helgeson V. S., Sanderman R., Ranchor A. V. (2010). Type of social support
matters for prediction of posttraumatic growth among cancer survivors”, Psychooncology,
19 (1), pp. 46–53.
Smatana M., et al. (2016). Slovakia: Health system review. Health Systems in Transition, 18 (6),
pp. 1–210.
Stratégia dlhodobej starostlivosti v Slovenskej republike. 2021https://www.employment.gov.
sk/files/sk/rodina-socialna-pomoc/socialne-sluzby/strategia-dlhodobej-starostlivosti-sr/
strategia-dlhodobej-starostlivosti-sr-sept-2021.pdf
Strauss A. L., Corbin J., Fagerhaugh S., Glaser B. G., Maines D., Suczek B., Wiener C., (1984).
Chronic Illness and the Quality of Life, The C.V. Mosby Co., St. Louis-Toronto.
Weitzner M., Haley W., Chen H. (2000). The family caregiver of the older cancer patient.
Hematology/Oncology Clinics of North America, 14, 1, pp. 269–281, https://doi.
org/10.1016/S0889-8588(05)70288-4.
Wódz K. (1996). Praca socjalna w środowisku zamieszkania. Warszawa: Wydawnictwo Interart.
Zebrack B., Jones B., Smolinski K. (2015). Oncology Social Work Interventions Throughout the
Continuum of Cancer Care. In: Christ G., Messner C., Behar L. (ed.). Handbook of
Oncology Social Work: Psychosocial Care for People with Cancer, pp. 35–42, New York:
Oxford Univeristy Press.
Zemplényi A. T., Csikós Á., Csanádi M. et al. (2020). Implementation of palliative care con-
sult Service in Hungary – integration barriers and facilitators. BMC Palliat Care 19, 41.
https://doi.org/10.1186/s12904-020-00541-0